The exorbitant cost of cystic fibrosis-related medication is generally covered by health insurance, but the enormous quantities of drugs often mean that families exceed their coverage limits or pay a hefty sum in copays alone. Recent changes to healthcare law have also reduced coverage of these treatments for many families. From unaffordable drug therapies to the life-saving ABI Vest Airway Clearance System to nebulizers to oxygen tanks, Child Life Society provides the funds necessary to ensure that children with CF have the best possible medical care.

Salty ocean air, specifically along the Caribbean Sea, offers a radical shift in CF patients’ well-being. When life centers around each inhale and exhale, daily living becomes burdensome on the entire family. Child Life Society subsidizes therapeutic respite trips for CF patients and their families to Key West, FL. Here, each family member rejuvenates in our immaculate and private Lifeshine Respite homes, and family sanity is restored.
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Many children with Cystic Fibrosis struggle to grow and gain weight due to pancreatic insufficiency, which prevents proper digestion of fats and proteins. Child Life Society provides essential, high-cost nutritional supplements that support healthy weight gain and overall well-being.

Frequent hospitalizations entail many hidden costs not covered by insurance. Child Life Society subsidizes insurance premiums and co-payments.

Caring for a child with Cystic Fibrosis makes managing household responsibilities overwhelming. Child Life Society helps offset housekeeping costs, giving parents much-needed relief.

Our Helpline and Telephone Support Services offer professional referrals, expert advice, and a sympathetic ear to CF family members. We also host teleconferences with professionals offering inspiration and education.

Frequent doctor’s visits, breathing issues, and hospitalizations disrupt the CF child’s school schedule. Child Life Society helps CF patients stay up-to-date by offering tutoring stipends.

Caring for a new baby while attending to a child with CF exacerbates a mother’s condition. Child Life Society subsidizes household and childcare help so she can recover and care for her family.

Exercise helps CF patients dislodge mucus from the lungs. Child Life Society purchases treadmills and exercise equipment, and supports children attending summer camps for sports and fitness.

Child Life Society organizes uplifting outings for CF moms—spa days, boat rides, comedy nights—to foster connections, reduce isolation, and recharge their energy.

Pre-holiday expenses can place a heavy strain on families, especially those caring for a child with CF. That’s why Child Life Society steps in with a helping hand, offering a special stipend for food and clothing. It’s one less worry for parents, and a little more comfort for their child.