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When Cystic Fibrosis weighs heavily on family life,

Child Life Society supports

 

Cystic Fibrosis, a degenerative genetic disease, causes the lungs to produce abnormally thick and sticky mucus. This mucus clogs the lungs and obstructs the pancreas, endangering breathing and proper digestion.Β 

Individuals with CF are highly susceptible to life-threatening lung infections, often requiring lengthy hospitalizations.

Currently, there is no cure for Cystic Fibrosis.

More about CF

Child Life Society provides
hope and support

helping to improve the quality of life for patients and their families.

Learn more
476d6d Icon Medical Equipment
Icon Lifeshine Respite
Icon Nutritional Suplements Program
Icon Ancillary Hospitalization Costs
Icon Housekeeping Help
Icon Helpline Support Services and Teleconferences
Icon Educational Support
Icon Post-Partum Subsidies
Icon Exercise Equipment
and Sports
Icon Support Groups
Icon Holiday Stipend

Restoring family sanity, one family at a time

Strength you can count on

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Most of us breathe involuntarily

Those with Cystic Fibrosis
struggle breath-to-breath

A day in the life of a patient with CFΒ 

Chest
Physiotherapy

Airway Clearance Techniques (ACTs) – 30-45 minutes twice daily, manually or with a vest.

Exercise

Physical activity helps clear mucus, improves lung function, and gives patients a better chance at long-term stability.

Pancreatic Enzyme
Replacement Therapy
(PERT)

Taken with every meal and snack. These enzymes are essential to digest food and absorb nutrients properly.

Nutritional supplements,
hydration & salt intake

Because CF affects absorption and causes salt loss, patients need constant replenishment to stay balanced and strong.

Regular
monitoring
and testing

Frequent doctor visits, blood work, and lung scans.

Medications

From antibiotics to anti-inflammatories, medications help manage symptoms, prevent infections, and improve quality of life.

Families Speak