Cystic Fibrosis, a degenerative genetic disease, causes the lungs to produce abnormally thick and sticky mucus. This mucus clogs the lungs and obstructs the pancreas, endangering breathing and proper digestion.Β
Individuals with CF are highly susceptible to life-threatening lung infections, often requiring lengthy hospitalizations.
Currently, there is no cure for Cystic Fibrosis.
More about CF
Child Life Society provides
hope and support
helping to improve the quality of life for patients and their families.
Chest
Physiotherapy
Airway Clearance Techniques (ACTs) β 30-45 minutes twice daily, manually or with a vest.
Exercise
Physical activity helps clear mucus, improves lung function, and gives patients a better chance at long-term stability.
Pancreatic Enzyme
Replacement Therapy
(PERT)
Taken with every meal and snack. These enzymes are essential to digest food and absorb nutrients properly.
Nutritional supplements,
hydration & salt intake
Because CF affects absorption and causes salt loss, patients need constant replenishment to stay balanced and strong.
Regular
monitoring
and testing
Frequent doctor visits, blood work, and lung scans.
Medications
From antibiotics to anti-inflammatories, medications help manage symptoms, prevent infections, and improve quality of life.
"Life before Child Life Society was isolating, frightening, and filled with uncertainty. That all changed with Mr. Wolkenfeld. His dedication knows no limits. He personally checks on families, ensures everything runs smoothly in the Key West respite homes, and leaves no detail unattended, from medical care to emotional support. He was personally in touch with my childβs medical team, almost like a liaison. He arranges uplifting outings for mothers, offers one-on-one guidance to fathers, provides financial aid for holidays and therapy, and is deeply respected by the medical teams he works with. Mr. Wolkenfeld is not just a leader, heβs a lifeline, committed to bringing light, dignity, and joy to every CF family. "
Esther K., Brooklyn, NY
"The Life Shine Respite House in Key West is a true haven. From the luxurious home and saltwater pool to the therapeutic ocean air, our stay was healing in every sense. Our daughter gained strength, energy, and joy, and her medical team was amazed by the improvement in her PFTs after the trip. Mr. Wolkenfeld and the Child Life Society go above and beyond, ensuring every detail, physical, emotional, and medical, is cared for. We are deeply grateful for their kindness and dedication"
Rina F., Tenafly, NJ
"Thank you so much, we truly had a wonderful time in Key West! The air there made a real difference. I had been congested on my left side for 10 days, and within just 2 days in Key West, the pain disappeared and my cough was much looser. The saltwater pool was perfect for the doctor-recommended exercises, and we loved the easily accessible boardwalk and beach. Now back in Canadaβs harsh weather, I only wish we couldβve stayed longer"
Family G., Canada
"Dear Child Life Society and Rabbi Wolkenfeld,
I wanted to express my heartfelt gratitude for the incredible opportunity you provide patients and their families to experience a peaceful retreat in Key West. The healing power of the fresh air and the comfort of the accommodations, including the pristine house, heated saltwater pool, and entertainment options, are a true blessing for those struggling with respiratory illness. I have been accompanying a family member who is a patient and recipient of Child Lifeβs services for several years and each time I see the tremendous impact time spent at the βChildβs Lifeβs Key West Resortβ has on the physical and emotional wellbeing of the patients as well as their caregivers. However this year was especially meaningful as I, too, was on the path to recovery from cancer. The experience not only positively impacted the patient but also brought healing and solace to me as a family member. Thank you immensely for this invaluable gift. May Hashem repay you for everything!"
Miriam L., Lakewood, NJ
"Dear Rabbi Chaim Wolkenfeld,
Thank you so much, we really had a great time in Key west! The air over there is something else, my cough was much looser and easier. For about 10 days prior going to Key west, I felt congested on my left side, after just 2 days in Key west the pain disappeared. The delicious pool gave me a chance to do the exercise my doctor said is the best exercise for me. We really enjoyed the walks at the board walk and the beach, which are so close and accessible, so we can make the most out of it. Now returning to the harsh Canadian weather, where I can bearly breath outside, I wish we had stayed longer, maybe next year iyββh. Thank you again, may Hashem bless you for all you do for us cf patients."
Jacob R., Passaic, NJ
"By providing us with a house in Florida Child Life Society gave me the opportunity to benefit from the healthy air in Key West. The climate near the ocean helped me expand my lungs. The house was clean and included linen. The pool in the yard topped it off. My lungs feel less congested and it is easier for me to breathe after a swim. Thank you Rabbi Wokenfeld and Child Life Society. To have a pool in house and the opportunity to swim every day gave my lungs a much needed boost. With Appreciation,"
Leah B. - Chicago In.